Children with rare diseases fail to get medicines

For the past three months, parents of children suffering from rare diseases have been running from pillar to post at IPGMER failing to get medicines for their dear ones. The President of India released Rs 40 crore on 8 May to seven centres in the country to give treatment to those suffering from rare disease under the National Policy for Rare Diseases 2021.

Kidney diseases rising in Odisha

Though the exact data is not available, various studies show the prevalence of chronic kidney disease (CKD) is around 10-14% which is more than our national average, said Head and Assistant Professor of Nephrology Department, AIIMS-Bhubaneswar Dr Sandip Kumar Panda.